Meet The Team
Selina Olwanda Ogweno – Interim President
Setting up and/or building effectively responsive teams, safe spaces, accessible, affordable and well equipped comprehensive care facilities across Kenya for children and persons living with sickle cell, as a fundamental need is a lifetime mission for Selina.
In 2005, Selina joined the Children Sickle Cell Foundation Kenya after discovering that the eldest son was diagnosed to be living with Sickle cell and that the trait was prevalent in both her and husband’s family line. The most influential experience was the realization that no medical centre had effective response to sickle cell crises whenever it presented itself. Each time there was gross negligence or total ignorance on the part of medical fraternity or simply lack of appropriate facilities to address the same. In 2008 Selina was elected as treasurer and ultimately in 2010 was elected chairperson. Selina rose to the occasion and met many challenges, with aplomb and can now boast of key milestones in the journey whose achievements include formation of both virtual and face to face support groups which have proven to be the best therapy for persons living with sickle cell, their guardians and family members. Another key milestone is partnership with various institutions offering specialized care for SCD across worst hit sections of the country. LEARN MORE
Alieu Badara W Sambou – Interim VIce President
Occupation: Social Activist
Job Title: President The Gambia Sickle Cell Association Banjul Chapter, Vice Principal Gaye Njorro Skills Academy Brusubi Turntable, Founder/President Mboka Clothing line Network, Yali Network Member
Name of Organization: The Gambia Sickle Cell Association Banjul Chapter.
OBJECTIVES: To Educate, Learn and Support people living with Sickle Cell Disorder and other related Illnesses to acquire a decent life with no stigma and segregation.
Arafa – Interim Secretary
Arafa is a sickle cell warrior and has been working passionately in sickle cell disease advocacy in Tanzania and internationally for over 10 years. She is the founder of Sickle Cell Disease Patients Community of Tanzania, which was the first sickle cell disease patient advocacy organization in the country. This group is primarily focused on spreading sickle cell disease awareness, educating families affected by sickle cell disease, and provided hope and social support. Through digital outreach and in-person visits to sickle cell disease clinics, Arafa uses her own life experiences as a sickle cell warrior to offer advice and encouragement. She has also worked extensively with a wide range of media outlets in Tanzania, both in TV and radio, to decrease stigma and misconceptions around sickle cell disease. Beginning earlier this year, Arafa runs a weekly radio segment on Boresha Radio called “Sauti ya Shujaa” which includes interviews and education around sickle cell disease. Arafa has been invited and participated in many national and international conventions to cover the topic around the disease. She has served as a patient representative for medical conferences as well as community advocacy events across many countries. In 2012, she was invited and presented at Harvard University in the United States on sickle cell community outreach in Tanzania. Arafa has been recognized for her work as a community advocate and educator, including as 2017 recipient of the International Sickle Cell Advocate of the year Award by Sickle Cell 101 in the United States. She is a regular contributor in fundraising and charity events, hospital and school visits. In recent years, she has turned her attention to building partnerships with other organizations fighting sickle cell around the world, especially in Africa. In early 2020, she participated in the launch of the East African Sickle Cell Alliance as the Tanzanian representative, alongside advocates and warriors from Kenya and Uganda. She is enthusiastic about participating in the growth of the African Sickle Cell Alliance in her role as secretary.
Arrey -Echi Agor -Ndakaw – Interim Vice Secretary
Arrey is a sickle cell warrior and a passionate advocate whose advocacy centers around using her personal experiences to demystify sickle cell and to help change the narrative through educative online campaigns and community outreach programs. Her passionate advocacy in sickle cell related matters has over the years, brought her some awards and recognition’s. She’s also the Founder of Joy2Endure Foundation, which is dedicated to bringing hope to persons living with sickle cell across her native Cameroon and hopes to see this spread to Sub Sahara Africa and the World.
Job Title: Founder of Joy2Endure Foundation
Name of Organization: Joy2Endure Foundation.
Objectives: To Educate, Empower and Advocate
Isaac Okello – Interim Treasurer
Isaac Okello a Sickle Cell Advocate from Uganda, is the Founder of Raising Hope International Friends (RHIF) – Sickle Cell Advocacy Organization. He plays a crucial role in designing Strategic plan and Implementation of the project at RHIF. He has been building a career as a driven Corporate Health Marketer for the last four years.
Isaac’s background as A Sickle Cell Advocate and CEO. He oversees all Sickle Cell Advocacy and Awareness Programs under RHIF. He supports and contributes immensely to improve quality of life of individuals living with sickle cell disease across the country.
He also liaises with community agencies and stakeholders to bring more awareness to this disease. Isaac Okello who is a Public Health student pursuing A bachelor’s degree of science in Public Health, Holds a degree in Business Management and Marketing and an Advanced Diploma(L-1) in Marketing from ICM. He is an Award winner of the community Advocate of the year 2020(SC101). Isaac Okello is a fully paid up member of Rotary International, serving as the Youth Director and Blood Donation Drive officer 2020 at the Club level.
“No one ever made a mistake than he who did nothing because he could do only a little”- Edmund Burke.
This is one of the type of phrases that motivates me. Together we can break the Sickle Cell Cycle in Africa.
Molyn Chima – Interim Public Health Officer
Occupation: Nurse, farmer, Entrepreneur
Job Title: Founder & Executive Director of Sickle Cell Anaemia Trust Zimbabwe (SCATZ), CEO Ntentema investments
Name of Organization: Sickle Cell Anaemia Trust Zimbabwe (SCATZ)
VISION: Champion for sickle cell management in Zimbabwe.
MISSION: To manage sickle cell Anaemia through implementing appropriate and sustainable interventions in Zimbabwe.
GOAL: To become the leading organisation for sickle cell and care in Zimbabwe
Ayuk Besong Anne-Chantal
– Interim Communications Officer
Anne-Chantal is a Cameroonian communications expert who now presently works as a volunteer Communications Officer for the French Federation of Sickle Cell Disease and Thalassemia Patient Associations, Fédé SOS GLOBI.
Born in a family of 4 SS and 2 AS kids, the warrior A-C, as she is fondly called has spent her time out of work educating families of persons living with SCD and raising awareness on the disease through an active online advocacy campaign..
Her big dream is to see African countries develop robust health systems with the capacity to assist persons like her living with SCD or carriers or SCD patient care givers.
AC’s moto in life is “do not keep for tomorrow what you can do today”. The mother of 2 believes in many hands tying a bundle better and has always nurtured the dream of seeing a day when all the scattered global actions being carried out to tackle SCD become one. When SCD Voices unite to talk of their plight and fight for their rights